Databox

Project DataBox: Digital Health Management in Patients’ Hands

Laboratory results, radiographs, ECGs, or medical reports: Today, German citizens generate huge amounts of health-related data – at the general practitioner, the specialist, or in hospital. Yet, there is no system storing such individual data securely at one place, making it accessible for later treatments or research, and thus creating added value for the general public. DataBox is changing this unsatisfying situation: through individual data rooms for each and every patient.

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Under the umbrella of the German Cancer Research Center (DKFZ), and in cooperation with SAP and Siemens Healthineers, physicians, researchers and IT specialists have been developing a system called DataBox. In the first place, the platform enables patients to collect data regardless of format, share it with the doctors of their choice and receive data from them. In the long run, DataBox shall make diverse systems readable and comparable among one another. That way, all important information would be available for future treatments and could be taken into account for diagnosis and therapy recommendations. In addition, DataBox aims at making experience from previous therapies available for similar cases. In a second step, the involved experts hope for new diagnostic methods and treatment concepts through big data analysis. Major goals are the provision of better prevention measures for all and of more effective therapies for the sickened patients. 

Within DataBox, it’s the patients who hold all rights to their data. Only with their consent, digital, health-related information is compiled, saved and made accessible. For the patients, DataBox is a safe and transparent information service that can be accessed online. Physicians, by contrast, can quickly and comfortably track the complete medical history if they are authorized to view their patients’ data.

First practical tests involve patients of the National Center for Tumor Diseases (NCT) in Heidelberg, and lung cancer patients of the Cologne University Medical Center who are being treated within the national Network Genomic Medicine (nNGM). The current project phase represents a feasibility study in which the basic functionalities of DataBox are being developed. Subsequent to the 18-month-pilot phase, the platform shall further be developed by extending its functionalities. The long-term goal of the project is the inclusion of DataBox in the standard of care. Having started in January 2018, the project is funded by the Federal Ministry of Education and Research (BMBF) and the Federal Ministry of Health (BMG).

Contact

© NCT/Philip Benjamin

Dr. Stefanie Rudolph
Scientific Coordinator DataBox
phone:  +49 6221 42-5310
mobile: +49-1522-8563560
stefanie.rudolph@dkfz.de

© private

Katja Syri M.A.
Scientific Communications Manager DataBox
phone:  +49 6221 42-1619
mobile: +49 162-3448269
katja.syri@dkfz.de

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