NAKO Health Study

The NAKO Health Study is a longitudinal population study (designed for a runtime of 20-30 years) aiming to research causes of widespread diseases such as cancer, dementia, diabetes, infectious diseases, and myocardiac infarction.

It is run by a network of German research institutions (Helmholtz Association, Universities, Leibniz Association) which are organized as an association to that end. The NAKO Health Study receives public funding from the German Ministry of Education and Research, the Helmholtz Association and the participating federal states.

In the course of the study, 200.000 randomly selected voluntary participants are being interviewed and examined in one of 18 study centers located across Germany. All study data collected in this process are brought together in pseudonymized form as immediately as possible in the study’s so-called integration center and stored long-term.

DKFZ runs this integration center in cooperation with University Medicine Greifswald; splitting up the task into two locations allows for a high degree of data security and availability. The integration center develops and runs the web-based software tools needed for the collection and processing of the study data and thus warrants efficient and standardized data collection at all study centers and a great number and variety of data sources. Furthermore, the center develops interfaces to competence centers of the study that process data on specific topics and implements centralized processes to quality-check, process, and augment data and allocate them for scientific use.

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